top of page
SBC Logo Transparent background
Writer's pictureSurviving Breast Cancer

Advice From a Survivor

By Store My Tumor


The most common statement we receive from people we talk to is… I wish I knew about the importance of preserving cancer cells alive at the time of my surgery. Why didn't my doctor talk to me about the option of storing my tumor tissue? Doesn't he understand my survival is everything? I have a family that I need to be here for!


To answer that question- most doctors are always going to go with the standard of care treatment- surgery, chemo and radiation. They have no time and this is what they are taught to do. Anything aside from that is not known to them and they don’t want to go outside the norm. This is why a patient must take control of their own treatment.


If you have a doctor that you feel you aren’t getting the right answers from, then find a new doctor. If you feel your treatment plan isn’t right for you, then ask questions. You need to be a part of your treatment plan so that you feel included in your survival and can help to ensure it.


The standard of care is okay for some people but not for all. If you feel you want to take control of your treatment and personalize a treatment that is just for you then you need to do some research. StoreMyTumor can help you preserve your cancer cells and tissue alive and initiate a number of advanced diagnostics and personalized immunotherapies for example.


Did you know?

Hospitals routinely discard tumors post-surgery, or they may save a very small piece of the tumor preserved in paraffin, which will not keep the cells alive. StoreMyTumor preserves your cancer cells and tissue in a live, viable format. Patients can store tissue collected from a surgery or biopsies, or fluid from ascites drainage (paracentesis). Call them if you are having a procedure that may involve removing tumors or cancer cells.


What are the preserved live cells or tissue useful for you ask?


· Sensitivity Testing (diagnostic) - tests which drug or combination is most effective to target the tumor. Can be done for chemo therapeutic agents only, or a wider range of drugs that include chemo, targeted, and immunotherapy. This eliminates the trial and error process doctors go through and the severe side effects that accompany the wrong chemo and drug. Applies to all indications and requires Viable tumor tissue.


· Genomic Sequencing (diagnostic) - checks for hundreds of mutations on the tumor and matches the right drug to mutations expressed by the tumor. Applies to all indications and requires formalin or paraffin tissue (fixed/dead).


· Personalized Vaccines (immunotherapy) - stimulates the immune system to recognize and fight the cancer cells. Good to clean the body from residual cancer cells after surgery/chemo. Applies to all indications. Available in trials across the USA and internationally. Applies to all indications and requires Viable tumor tissue.


· Adoptive T-cell Transfers (immunotherapy) - multiplies the army of killer T-cells that already recognize the tumor to dramatically boost the immune system’s ability to destroy the tumor. Available in trials across the USA and internationally. Applies to all indications and requires Viable tumor tissue.


Personalized medicine is transforming our thinking about designing effective treatments. If you have questions, you can also set up a time for them to give you a call.

Knowledge is Power! Know All Your Options! Take control!



 

Thanks to StoreMyTumor for sharing this blog with out community!



Recent Posts

See All
  • Multiple Dates
    Mon, Nov 18
    Online Event
    Nov 18, 2024, 10:00 AM – 11:00 AM EST
    Online Event
    Nov 18, 2024, 10:00 AM – 11:00 AM EST
    Online Event
    The process of focused meditation with attention and intention can provide answers to various questions we may have especially around limiting beliefs. This is an opportunity to anchor the chakra teachings and transform our consciousness around.
  • Multiple Dates
    Mon, Nov 18
    Online Event
    Nov 18, 2024, 5:30 PM – 6:30 PM EST
    Online Event
    Nov 18, 2024, 5:30 PM – 6:30 PM EST
    Online Event
    Did you know you have magical powers? We all can literally change our bodies through breath and movement. Experience this ancient practice and feel your own powers grow!
  • Multiple Dates
    Mon, Nov 18
    Virtual
    Nov 18, 2024, 8:00 PM – 9:00 PM EST
    Virtual
    Nov 18, 2024, 8:00 PM – 9:00 PM EST
    Virtual
    Únete a nuestro grupo de apoyo emocional dirigido por una experimentada psicóloga para recibir el apoyo necesario mientras enfrentas el desafío del cáncer. El diagnóstico de cáncer puede traer consigo una carga emocional abrumadora, y estamos aquí para ayudarte a transitar este camino.
  • Multiple Dates
    Tue, Nov 19
    webinar
    Nov 19, 2024, 2:00 PM – 3:00 PM EST
    webinar
    Nov 19, 2024, 2:00 PM – 3:00 PM EST
    webinar
    Triage Cancer Conferences cover key tips to help navigate legal and practical issues, reduce the financial burden of a cancer diagnosis, and lower stress.
  • Multiple Dates
    Tue, Nov 19
    Zoom
    Nov 19, 2024, 7:00 PM – 8:30 PM EST
    Zoom
    Nov 19, 2024, 7:00 PM – 8:30 PM EST
    Zoom
    Caregiver support groups for cancer patients provide a platform to explore ways of caring for a loved one while simultaneously receiving vital emotional and practical support for themselves.
  • Multiple Dates
    Thu, Nov 21
    Virtual
    Nov 21, 2024, 7:00 PM – 8:15 PM EST
    Virtual
    Nov 21, 2024, 7:00 PM – 8:15 PM EST
    Virtual
    This is your weekly breast cancer support group! It's a welcoming and inviting virtual space where you can come to meet others, ask questions, or just listen in. Our sessions are always confidential and a friendly space offering support as well a a bit of humor.
  • Multiple Dates
    Thu, Nov 21
    Virtual
    Nov 21, 2024, 7:00 PM – 8:30 PM EST
    Virtual
    Nov 21, 2024, 7:00 PM – 8:30 PM EST
    Virtual
    Join us for our signature Thursday Night Thrivers Meetup! On the third Thursday of every month, we will have a special meeting for the MBC community. This space will be hosted by the incredible Psychologist Nancy Gaulin.
  • Multiple Dates
    Mon, Nov 25
    Online Event
    Nov 25, 2024, 6:00 PM – 6:30 PM EST
    Online Event
    Nov 25, 2024, 6:00 PM – 6:30 PM EST
    Online Event
    Join us for the REIKI Circle of Care, a transformative virtual session where energy knows no boundaries. Experience the power of distance Reiki as it flows through your Chakras, bringing balance and universal energy to your body, mind, and spirit.
  • Multiple Dates
    Tue, Nov 26
    Online Event
    Nov 26, 2024, 11:30 AM – 12:30 PM EST
    Online Event
    Nov 26, 2024, 11:30 AM – 12:30 PM EST
    Online Event
    Join Kim OBrien for guided Qi Gong class. A time-honored practice that utilizes breath, movement, and intention setting to promote health and equilibrium in the body.
  • Multiple Dates
    Tue, Nov 26
    Virtual
    Nov 26, 2024, 8:00 PM – 9:00 PM EST
    Virtual
    Nov 26, 2024, 8:00 PM – 9:00 PM EST
    Virtual
    ¡Únete con nosotros para nuestro exclusivo Evento Martes - después del diagnóstico en español!

Upcoming
events

  • Meditation Affirmations: Throat Chakra (Vishuddha)
    Meditation Affirmations: Throat Chakra (Vishuddha)
    Multiple Dates
    Mon, Nov 18
    Nov 18, 2024, 10:00 AM – 11:00 AM EST
    Online Event
    Nov 18, 2024, 10:00 AM – 11:00 AM EST
    Online Event
    The process of focused meditation with attention and intention can provide answers to various questions we may have especially around limiting beliefs. This is an opportunity to anchor the chakra teachings and transform our consciousness around.
  • Restorative Yoga with Kate: Follow your Gut
    Restorative Yoga with Kate: Follow your Gut
    Multiple Dates
    Mon, Nov 18
    Nov 18, 2024, 5:30 PM – 6:30 PM EST
    Online Event
    Nov 18, 2024, 5:30 PM – 6:30 PM EST
    Online Event
    Did you know you have magical powers? We all can literally change our bodies through breath and movement. Experience this ancient practice and feel your own powers grow!
  • Apoyo Emocional
    Apoyo Emocional
    Multiple Dates
    Mon, Nov 18
    Nov 18, 2024, 8:00 PM – 9:00 PM EST
    Virtual
    Nov 18, 2024, 8:00 PM – 9:00 PM EST
    Virtual
    Únete a nuestro grupo de apoyo emocional dirigido por una experimentada psicóloga para recibir el apoyo necesario mientras enfrentas el desafío del cáncer. El diagnóstico de cáncer puede traer consigo una carga emocional abrumadora, y estamos aquí para ayudarte a transitar este camino.
  • Triage  Cancer: Tips on Accessing Care
    Triage  Cancer: Tips on Accessing Care
    Multiple Dates
    Tue, Nov 19
    Nov 19, 2024, 2:00 PM – 3:00 PM EST
    webinar
    Nov 19, 2024, 2:00 PM – 3:00 PM EST
    webinar
    Triage Cancer Conferences cover key tips to help navigate legal and practical issues, reduce the financial burden of a cancer diagnosis, and lower stress.
  • The Caregiver Huddle
    The Caregiver Huddle
    Multiple Dates
    Tue, Nov 19
    Nov 19, 2024, 7:00 PM – 8:30 PM EST
    Zoom
    Nov 19, 2024, 7:00 PM – 8:30 PM EST
    Zoom
    Caregiver support groups for cancer patients provide a platform to explore ways of caring for a loved one while simultaneously receiving vital emotional and practical support for themselves.
  • Thursday Nights Thrivers Meetup
    Thursday Nights Thrivers Meetup
    Multiple Dates
    Thu, Nov 21
    Nov 21, 2024, 7:00 PM – 8:15 PM EST
    Virtual
    Nov 21, 2024, 7:00 PM – 8:15 PM EST
    Virtual
    This is your weekly breast cancer support group! It's a welcoming and inviting virtual space where you can come to meet others, ask questions, or just listen in. Our sessions are always confidential and a friendly space offering support as well a a bit of humor.
  • MBC Support Group with Nancy Gaulin
    MBC Support Group with Nancy Gaulin
    Multiple Dates
    Thu, Nov 21
    Nov 21, 2024, 7:00 PM – 8:30 PM EST
    Virtual
    Nov 21, 2024, 7:00 PM – 8:30 PM EST
    Virtual
    Join us for our signature Thursday Night Thrivers Meetup! On the third Thursday of every month, we will have a special meeting for the MBC community. This space will be hosted by the incredible Psychologist Nancy Gaulin.

1

Surviving Breast Cancer provides breast cancer support, events, and webinars at no cost to you! Whether you are looking to gain more knowledge on a particular topic or meet up with other breast cancer survivors, we have something for everyone. 

2

Our standing appointment on Thursdays is for all stages. We also host specific breakout groups once a month for specific stages and subtypes such as Metastatic breast cancer, and Inflammatory Breast Cancer, etc. 

3

The Book Club meets the first Sunday of every month at 11 am ET. You are welcome to join each month or pick and choose your month based on your availability and the book we are reading. 

4

Through art, writing, and other creative modalities, we hold the power to manage our stress, make sense of our now, and relax into moments of stillness. 

5

Free, monthly, online classes in restorative yoga, yoga for breast cancer, and Zumba. 

6

Después de un Diagnóstico

bottom of page